Tomorrow is the day I didn't want to come...
An ultrasound guided thoracocentesis (I think I spelled it right!)
To put it in layman's language:
My left lung will be drained of about one and a half liters of fluid
It's been getting increasingly difficult to breathe with more shortness of breath especially when I bend over to pick something up
It's supposed to be a quick in and out (two hours) procedure
It's just the history I talked about in my last blog that's there in the back of my mind:(
The hope is that with the fluid gone, my left lung can re-expand improving my breathing
That is the unknown...
If the fluid will come back
Quickly
Slowly
Partially
Completely
Or...not at all
Which would obviously be the optimum desired end:)
The waiting and deciding process has been hard...and good
Hard, because it's felt like the "beginning of the end"
And I like to breathe!!
Good, because it's made me continue to fight to "set my mind on things above, things that are good and lovely" and to learn practically, not just theoretically, that God is good and even in this, yes this cancer journey, he will cause it (me) to be used for good!
That sounded like a very brave statement
But believe me...
I feel mostly very weak most of the time!
Again, your encouragements and prayer and support mean more than you can imagine:)
Thanks
PS - One more thing about tomorrow that has added heartache...
My mom entered Hospice today and I just got word that she has only hours to live before going to her eternal home
Prayer for our family is much appreciated
Thanks again
This will be a chronicle of my daily cancer journey, including updates and reflections.
Tuesday, September 24, 2019
Thursday, September 12, 2019
History Repeating Itself?
One of my hardest memories from the past is the last months of my dad's life
Watching him battling lung cancer
Which we now know is the very cancer that I'm battling
A rare form of mesothelioma that derives from a genetic mutation passed on from my dad
I remember...
The repeated surgeries to remove tumors from around his lungs
(Which are not able to be removed in my case)
And the fluid needing to be drained out of his lungs as it would cause shortness of breath as it built up
Sorry, if this is getting a little graphic:(
But, it is this particular memory that is really rocking my world right now
As I seem to be experiencing increasing shortness of breath
Especially when I bend over to pick something up
Is this the beginning of the end?
Is this evidence that the cancer is spreading?
Is this my dad's cancer history repeating itself in me?
Kind of an inevitable way things are moving?
It's hard not to feel that's not what's happening
Not that I've given up...
Though I might feel like doing that every day
(which I guess is what much of life can be!)
So...remembering the need to breathe deep to keep the lungs working
Cindy and I went on a short walk/run (you heard it right!) two days ago
To get me breathing deep!
It did...
But it seems to have backfired yesterday as my breathing just seemed to get worse:(
That was hard.
It's not that I'm afraid to die
I'm not
I have a rock solid hope in Jesus
And the reality of an eternal life, amazing life that is mine because of my hope in him
There just seems to be so much more living for me to do
And needing to have fluid removed from my lungs seems to be too much like the beginning of the end
Like history repeating itself
So that's where I'm at today
Needing to decide what I need to do
Needing to experience God's peace
Needing to remember again that he is good
And I am not merely my dad's history repeating itself
Thanks for listening...
PS In the meantime, Cindy and I are going to go on a little hike to enjoy life together in God's beautiful creation:)
Watching him battling lung cancer
Which we now know is the very cancer that I'm battling
A rare form of mesothelioma that derives from a genetic mutation passed on from my dad
I remember...
The repeated surgeries to remove tumors from around his lungs
(Which are not able to be removed in my case)
And the fluid needing to be drained out of his lungs as it would cause shortness of breath as it built up
Sorry, if this is getting a little graphic:(
But, it is this particular memory that is really rocking my world right now
As I seem to be experiencing increasing shortness of breath
Especially when I bend over to pick something up
Is this the beginning of the end?
Is this evidence that the cancer is spreading?
Is this my dad's cancer history repeating itself in me?
Kind of an inevitable way things are moving?
It's hard not to feel that's not what's happening
Not that I've given up...
Though I might feel like doing that every day
(which I guess is what much of life can be!)
So...remembering the need to breathe deep to keep the lungs working
Cindy and I went on a short walk/run (you heard it right!) two days ago
To get me breathing deep!
It did...
But it seems to have backfired yesterday as my breathing just seemed to get worse:(
That was hard.
It's not that I'm afraid to die
I'm not
I have a rock solid hope in Jesus
And the reality of an eternal life, amazing life that is mine because of my hope in him
There just seems to be so much more living for me to do
And needing to have fluid removed from my lungs seems to be too much like the beginning of the end
Like history repeating itself
So that's where I'm at today
Needing to decide what I need to do
Needing to experience God's peace
Needing to remember again that he is good
And I am not merely my dad's history repeating itself
Thanks for listening...
PS In the meantime, Cindy and I are going to go on a little hike to enjoy life together in God's beautiful creation:)
Sunday, September 1, 2019
The Cycle
I am on my fourth treatment cycle
This is how it works...
For 20 days I take an immense amount of supplements (approximately 190/day) to both attack my malignant pleural mesothelioma and to build up my body in ways that it is deficient so that it can also better defend against the enemy within
This is supported by daily detoxing and a strict diet (aka no ice cream or donuts, plus a bunch of other food items that used to be on my menu selection!)
A cycle ends with 5 days of no supplements to give my body a break, while at the same time doing additional detoxing to rid my body of the toxins that are being produced by the attack on the cancer cells
So, a full cycle is 25 days
And I began my fourth cycle four days ago
And my body doesn't like it...at all
I feel like I have a bad case of the flu (fever and body aches) all the time
It is the way the cycles work
As the pancreatic enzymes do their work on the cancer
My body feels like there is a war going on inside of me
Which I guess there is:(
And it usually lasts for several days at the beginning of each cycle
And with it the easy mental descent into darkness...
This isn't fair for Cindy...she needs a husband, not a patient
Will this ever end?
Will I ever have "value" again?
You get the idea
I really hate feeling crappy day after day after day!
But that seems to be my season right now
For however long that is
I'm not a very faithful blogger - don't feel up-to-it much of the time
But for those of you who still read these and pray and send notes of encouragement and are supporting me in the midst of this time
Thank you!
You can't imagine the light and hope and strength it gives to me as I walk this cancer journey
Thank you!
This is how it works...
For 20 days I take an immense amount of supplements (approximately 190/day) to both attack my malignant pleural mesothelioma and to build up my body in ways that it is deficient so that it can also better defend against the enemy within
This is supported by daily detoxing and a strict diet (aka no ice cream or donuts, plus a bunch of other food items that used to be on my menu selection!)
A cycle ends with 5 days of no supplements to give my body a break, while at the same time doing additional detoxing to rid my body of the toxins that are being produced by the attack on the cancer cells
So, a full cycle is 25 days
And I began my fourth cycle four days ago
And my body doesn't like it...at all
I feel like I have a bad case of the flu (fever and body aches) all the time
It is the way the cycles work
As the pancreatic enzymes do their work on the cancer
My body feels like there is a war going on inside of me
Which I guess there is:(
And it usually lasts for several days at the beginning of each cycle
And with it the easy mental descent into darkness...
This isn't fair for Cindy...she needs a husband, not a patient
Will this ever end?
Will I ever have "value" again?
You get the idea
I really hate feeling crappy day after day after day!
But that seems to be my season right now
For however long that is
I'm not a very faithful blogger - don't feel up-to-it much of the time
But for those of you who still read these and pray and send notes of encouragement and are supporting me in the midst of this time
Thank you!
You can't imagine the light and hope and strength it gives to me as I walk this cancer journey
Thank you!
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