Friday, June 26, 2020

Uncertainty in Uncharted Territory

Today, June 26th, was my eighth chemo and immunotherapy treatment cycle

Happening, as most of you know, every three weeks

It was uneventful - a good thing

Meaning no anaphylactic reactions, passing out or experiencing heart stoppages

Which I had become rather famous for:(

And it was fairly quick

As I only receive two immunotherapy drugs and one chemotherapy drug now

The harshest chemo drug being stopped after the sixth treatment

When it could have become more detrimental than helpful.

It is also hoped that this will lessen the side effects

Though, to be frank, I feel pretty yucky right now when writing this after my treatment.

So...

For a brief report on our meeting with my doctor

And "uncertainty in uncharted territory"

After several weeks of my tumor markers going down,

My blood work three weeks ago showed my tumor markers going back up

Which is not the desired direction...

And resulted in my doctor ordering a CT scan to assess the state of my tumor.

This just created more questions and uncertainty:

The tumor remained about the same size, possibly a fraction smaller

Good news!

However...the scan also showed:

1. Increased fluid in my right lung

Not good news

2.  A thickening of the wall of the esophagus

Not good news

The result of the above being increased difficulty in swallowing.

The good news is that an "urgent request" from my doctor

Has resulted in being scheduled for an endoscopy this coming Monday, June 29th

For which we are very thankful:)

So the uncertainty...

1. My doctor does not know why the tumor markers went up

2. My doctor does not know why there is increased fluid in my right lung

3. The endoscopy on Monday will hopefully help explain why there is a thickening of the
wall of the esophagus

In uncharted territory...

My doctor made an incredible statement again today

That reinforces what he has been telling us all along

Regarding this cancer journey I am experiencing

"There is possibly no other case in the world

Where your rare genetic form of advanced pleural mesothelioma

Is showing successful treatment"

Wow!

Quite a statement, huh?!

It should make everyone consider the fact

That there is a God who still does miracles!

That we are on a very special journey together:)

Yes, I am extremely appreciative of and thankful for my doctor and his team

But, possibly the ONLY case in the world showing successful treatment?!

Why me?

I don't know...

But I am very thankful:)

And, I want to give thanks again to you all who are walking this journey with me:)

I can't express how much I value your encouragement and prayer and positive thoughts!

Blessings,

Dave

**To hope and peace and joy in the midst of uncertainty, finding certainty in God!

P.S. I will follow up with a report after the endoscopy:)

Saturday, June 20, 2020

Father's Day

It's been awhile since you've heard from me

For two reasons:

1. Not a lot has changed

So what I would write would seem rather repetitive

2. What has changed has caused a lot of uncertainty and confusion

So what I would write would be rather negative and complaining

When I really have a lot to be thankful for...

I am still alive!

And making it to another Father's Day tomorrow...

Though Father's Day is not one of my favorite holidays:(

Not because we don't have amazing and wonderful children

We do

They are all incredible

And a huge blessing!

And Cindy and I are so very thankful for each of them

And the incredible individuals and fathers and mothers they are

Or, in the case of one of them, unquestionably will soon be!

It is the regret that another Father's Day brings...

For often not being the father that my children needed and deserved

As they were growing up.

For being so consumed with building

A ministry and a business

That became a blessing to many other young people

Who called me "dad" and Cindy "mom"

And yet often kept me from being the dad that my children wanted and needed.

Regret is a painful thing

It can push us to seek to heal the wounds from the past

To seek and find forgiveness

And rebuild relationships that have been damaged

But it cannot eliminate the hurt that has been done

Or the time and opportunities that have been lost

And cannot be recovered.

Regret...

I'm hoping that this brief "confession"

Might spur on any young fathers

Or mothers

Who are reading this blog

To make the most of the years you still have

With your children

While they are still in your care.

You will not regret making your children such a priority!

Thanks for listening...

Dave

P.S. My eighth chemo and immunotherapy treatment

Is this coming Friday, June 26th

Saturday, June 6, 2020

40 YEARS!

Tomorrow, June 7th, is Cindy and my 40th wedding anniversary!

Which I'd like to reflect on for a few moments:)

But first...

My immunotherapy and chemotherapy treatment yesterday

Went without a hitch

Yay!

The chemo drug that has the harshest side effects

Was eliminated this time

And from now on

As six rounds is the limit to its effectiveness

Before it begins to negatively

Impact the body

More than positively impact it.

So...

We will see if the side effects are reduced this time

Which would be wonderful

As the last round definitely

Impacted me the most

As the chemo drugs have built up in my body.

I will find out on Monday or Tuesday

The latest results regarding the tumor markers...

And then my next treatment is on June 26th.

It was amazing to hear my doctor use the word "miracle" yesterday

As he described my healing progress!

I don't know about you

But that is not a typical word used by a doctor nowadays:)

NOW...

Reflections on reaching 40 years of marriage!

GRATITUDE!!

What else can describe

The fact that Cindy and I have reached this milestone

When just four months ago

It seemed like I only had days or weeks to live!

And so I am deeply grateful

Grateful for:

God's mercy

My oncologist and his team

My family and friends...YOU ALL!

CINDY

How can I capture in words

What Cindy, my wife of 40 years, means to me

And the different man I am today

Because of the 40 years God has given us together!

How can I describe the gift she is to me?

To repeat a fictitious quote from Leonardo da Vinci in the movie "Ever After"

As he described how he viewed Danielle's importance to Prince Henry

Cindy "completes me"

I have said many times

That you wouldn't want to know me

If it weren't for her the difference she has made on my life!!

I am grateful

That God, in his mercy,

Has given us 40 years

And counting!!

Thank you again, dear friends,

For walking this cancer journey with us

It has definitely been a miraculous adventure!

Blessings,

Dave